A weekend of celebrating our children – and making wonderful friends
Category: Uncategorized
7 Emotional Wonders of the Special Needs Parenting World
Too often we read articles about the lows of special needs parenting. The sadness, envy, guilt, anger, despair, frustration, anxiety: it reads like a list of 7 deadly sins.
Continue reading 7 Emotional Wonders of the Special Needs Parenting World
Please don’t ask me that question!
Being a parent to a special needs child is difficult. But being a friend or family member of that parent is also a challenge, I have realised. In particular, knowing what to say, how to say it, when not to say anything, and when I need their support, is a testing task.
Get Real
When I was younger I had my life and family mapped out. I would meet and marry the man of my dreams, and fall pregnant with ease. Following a textbook birth, we would breeze through a divine few months of new-baby heaven. A perfect toddler and child, my little angel was going to be ridiculously beautiful, with intelligence off-the-scale, achieving highly in sport, joyful around adults and popular with peers.
Food for Thought . . .
Looking back two years ago, when Jenson was coming up to six months, I remember questioning my lack of enthusiasm about the prospect of weaning. Why did the thought of presenting Jenson with a spoonful of slop not fill me with excitement? Continue reading Food for Thought . . .
Hey Good Looking
Any new parent will tell you that it becomes a daily occurrence for strangers to shower you with compliments about how cute and adorable your little one is. At first, especially during that haze of new-born fever, you feel like your little treasure really is the best looking baby that ever did grace this planet. No other baby could compare!
5 secrets that my friends and family may not know about me
Making Sense
Throughout Jenson’s various hospital appointments, we have heard the term ‘sensory’ used over and over again. Jenson has always been hypersensitive; he has only really just started letting us hold his hands and touch his face, at the age of two.
Weekend of Wonder
Since having Jenson 19 months ago I have, as all new mums do, become an emotional liability triggered by the most innocuous of things. Well this new (and evidently permanent) ailment of mine has just taken on a whole new life of its own, starting last Friday. Friday was the first day of the chromosome 18 European conference which I attended with Jenson and Matt. From the very moment that we set foot into the hotel lobby, it was like being reunited with a family that you have known all your life but at the same time never knew existed.
D – DAY (Diagnosis Day)
Today our paediatrician delivered the news to us that all parents trust to be the news that only other parents get. The scenario that you very briefly let your mind dwell on when you think about starting a family, when you go for your first scan, and when your baby is placed in your arms for that first time. You don’t dare consider that it might actually happen to you, for that would be too much for our minds to deal with. Well it happens, and it really has happened to us. Continue reading D – DAY (Diagnosis Day)
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