Too often we read articles about the lows of special needs parenting. The sadness, envy, guilt, anger, despair, frustration, anxiety: it reads like a list of 7 deadly sins.
Being a parent to a special needs child is difficult. But being a friend or family member of that parent is also a challenge, I have realised. In particular, knowing what to say, how to say it, when not to say anything, and when I need their support, is a testing task.
When I was younger I had my life and family mapped out. I would meet and marry the man of my dreams, and fall pregnant with ease. Following a textbook birth, we would breeze through a divine few months of new-baby heaven. A perfect toddler and child, my little angel was going to be ridiculously beautiful, with intelligence off-the-scale, achieving highly in sport, joyful around adults and popular with peers.
Looking back two years ago, when Jenson was coming up to six months, I remember questioning my lack of enthusiasm about the prospect of weaning. Why did the thought of presenting Jenson with a spoonful of slop not fill me with excitement? Continue reading Food for Thought . . .
Today our paediatrician delivered the news to us that all parents trust to be the news that only other parents get. The scenario that you very briefly let your mind dwell on when you think about starting a family, when you go for your first scan, and when your baby is placed in your arms for that first time. You don’t dare consider that it might actually happen to you, for that would be too much for our minds to deal with. Well it happens, and it really has happened to us. Continue reading D – DAY (Diagnosis Day)